Im 27 years old and looking into surgery. I have pseudo tumor cerebri. Which means false tumor of the brain. So far the only cause they know of is high weight. I am 5’4 and 265 lbs. It has many complications.
They wanted me to have brain surgery, and I refused. I’m not comfortable having anyone poke around in my brain. I was taking meds to control to flow of spinal fluid, decreasing the symptoms.
Now, I can no longer take the medications I was prescribed for this illness. They gave me kidney stones. And my neurologist refuses to see me, because he wants me to have the brain surgery.
My family doctor respects my wishes, but is only able to do so much for me. He has put my name in to see a surgeon in my area. But I was told wait times are 4-5 years. I could be BLIND by then. Not to mention many other complications that could arise.
Is there anyway that I can rush myself in? Or anything my doctor can do? Because its 4-5 years to even have your consultation with the surgeon…. then more wait time for the actual surgery.